The Neuromuscular Disease Foundation

Disease-specific health organization based in Beverly Hills, CA.0 Exempt under §501(c)(3).

MissionTHE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.

Financial snapshot · TY 2021

$439K
Total revenue
$1.2M
Total expenses
$1.5M
Net assets

Financial health · TY 2024

80
Strong financial health
Composite score out of 100 based on reserve ratio, program efficiency, and revenue diversification.
Reserve ratio
100
22.4 months of expenses
Program efficiency
100
90.2% spent on programs
Revenue diversity
0
Mix of program fees, grants & contributions

Leadership compensation

$207,667
98th percentile vs. peers
$87,500
60th percentile vs. peers
Geoffrey Gee
Executive Director
$13,689
98th percentile vs. peers

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