Ehlers-danlos Society

Health care organization based in New York, NY. 6 employees. Exempt under §501(c)(3).

MissionTHE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK

EIN
38-2813140
State
NY
Sector
Health care
Budget band
$2.5M–$5M
Latest filing
TY 2024
Records
2 officers · 5 years

Financial snapshot · TY 2024

$5.0M
Total revenue
$4.5M
Total expenses
$8.2M
Net assets

Financial health · TY 2024

33
Financial health needs attention
Composite score out of 100 based on reserve ratio, program efficiency, and revenue diversification.
Reserve ratio
14
2.5 months of expenses
Program efficiency
49
69.4% spent on programs
Revenue diversity
39
Mix of program fees, grants & contributions

Leadership compensation

$215,131
76th percentile vs. peers
$86,347
31th percentile vs. peers

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Ehlers-danlos Society Executive Compensation | 990 Data | DoubleNine