Cure Sanfilippo Foundation

Medical research organization based in Columbia, SC. 5 employees. Exempt under §501(c)(3).

MissionTo accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Financial snapshot · TY 2024

$2.8M
Total revenue
$1.6M
Total expenses
$13.9M
Net assets

Financial health · TY 2024

70
Strong financial health
Composite score out of 100 based on reserve ratio, program efficiency, and revenue diversification.
Reserve ratio
100
104.8 months of expenses
Program efficiency
75
80.1% spent on programs
Revenue diversity
0
Mix of program fees, grants & contributions

Leadership compensation

Cara O'neill
Chief Science
$146,196
45th percentile vs. peers
Katie Walton
Vice President
$122,727
45th percentile vs. peers

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Cure Sanfilippo Foundation Executive Compensation | 990 Data | DoubleNine